Fortbiken against Duchenne - 6 uren van het Fort van Borsbeek

Fortbiken against Duchenne - 6 uren van het Fort van Borsbeek
Dank aan alle deelnemers, sponsors en vrijwilligers
Deze mountainbiketocht is een initiatief van het Nederlandse Duchenne Parent Project en wordt georganiseerd in samenwerking met de Nederlandse stichting "Evenementen voor Maatschappelijke Organisaties Foundation (Emolife)".

maandag 30 november 2009

Reports and interviews on the research for a therapy of Duchenne muscular dystrophy.

Klik hier om doorgelinkt te worden naar de website www.duchenne-information.eu(Engels-, Duits- of Spaanstalig)

On these internet pages, Guenter Scheuerbrandt PhD., explains in research reports and interviews how the scientists and clinicians in many laboratories are trying to find treatments which could at least slow down significantly the course of the disease, if not yet lead to a complete cure. All families who have a son with this hereditary disease would like to know the basic facts and the newest results of these research efforts. These reports are written for them and also for their doctors in easy language so that those, who are not at home in biochemistry and medicine, will also understand what the researchers are doing for their child and how far they have progressed.

The information in the reports is based on scientific presentations at conferences as well as on publications in the scientific literature and on personal correspondence and discussions with many scientists.

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