Fortbiken against Duchenne - 6 uren van het Fort van Borsbeek

Fortbiken against Duchenne - 6 uren van het Fort van Borsbeek
Dank aan alle deelnemers, sponsors en vrijwilligers
Deze mountainbiketocht is een initiatief van het Nederlandse Duchenne Parent Project en wordt georganiseerd in samenwerking met de Nederlandse stichting "Evenementen voor Maatschappelijke Organisaties Foundation (Emolife)".

woensdag 30 januari 2013

Het verhaal van Maarten

Maarten is world-famous, especially in and around Kaggevinne Jo Rooseleers and his partner, Ilse Vanhoolandt, live in the rustic village of Kaggevinne near Diest in the province of Flemish Brabant in Belgium. Everyone knows the family and their children: fourteen-year-old Lukas, twelve-year-old Hannah and Maarten, who just turned ten. Maarten is especially well known around town. All of the children at school are his personal bodyguard. This is because Maarten has Duchenne Muscular Dystrophy (DMD). Therefore, the motto is: ‘Be careful with Maarten’. Maarten and grandad, who has picked him up from school for lunch, enter the room. ‘He has his hands full taking care of him,’ says Jo, ‘but he thoroughly enjoys it.’ Ilse continues, ‘We are a close-knit family. Family is everything to us, and to Maarten and his brother and sister.’ This is the down-to-earth story of a cheerful and energetic family coping with the sudden reality of DMD. Lees het volledige verhaal op de website van Prosensa

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